Childhood hints at the Aspergers label

As I described in yesterday’s post, I recently came to understand that I have lived with undiagnosed Aspergers Syndrome for 51 years. One of the first things people in the Autism community ask, especially as so many of us are arriving at the diagnosis as adults, is “Were you diagnosed or did you self-diagnose?” […]

By | March 30th, 2014|Patient Empowerment, The Body as Storyteller|1 Comment

What’s in a label?

This post was prompted by a recently discovered personal “label” after a half century of living without it.  I’m not a huge fan of labels – whether for my fellow human beings or for myself. And yet sometimes they’re extremely helpful, even necessary. When it comes to my health I’ve experienced that time after time when I could identify what was causing symptoms or dis-ease in my life I could rather quickly get better. So I’ve […]

By | March 29th, 2014|Patient Empowerment, The Body as Storyteller|3 Comments

When tragedy strikes

Anyone who is familiar with the popular music festival SXSW knows that tragedy struck my community this week. Not only is SXSW a city-wide celebration, I’ve participated professionally – both on the interactive side as a subject matter expert, and as the “momager” of an emerging hip hop artist who is performing this year. So this hurt hits close to home. This sad event comes right on the heels of an awful case for one of my patient advocacy clients. […]

The importance of telling our stories: raising the Patient Voice

I’ve decided to declare it patient advocacy month for White Horse Medicine! Continuing on the thread of my last blog on embracing our scars I want to celebrate some of the amazing patient advocate connections I’ve made in my efforts over the past few months to launch an innovative new patient-centered clinical model of care with Doctor Julie. One of the first things we undertook was to attend together a Harvard Medical School […]

I am Scar Clan

I recently ran into a great brand on Twitter and immediately ordered a tee shirt from them. RockScar Love was founded to “celebrate sexy scars, the lessons they teach us and the strength they create.” In this mission we are totally aligned. White Horse Medicine does much the same. I love the idea of celebrating scars. Celebrating them is not the same as […]

The peacock, the purple egg, and meeting an old friend for the first time

“The Doctor isn’t a man.”  I had decided to ride my bike to meet a new friend for the first time over coffee. Like many times before when I’ve settled into a quiet, quasi meditative state mentally on a bike ride, the vehicle my internal wisdom system chose for communicating with me was auditory. […]

The Big Bang and why I talk to “angels”

One day I’ll write more about the use of intuition in healing. So let me start by telling you my story and how it’s helped me thrive in spite of some pretty big challenges. My atunement to the subject of multi-sensory perception goes back to childhood. Though not talked about much, it runs in the family, actually. My grandfather was a physician who often “knew” what was wrong […]

I am Mother.

I AM MOTHER who grows dreams in my belly From my blood drinks the Tree of Life Rooted in heaven until the birth quake Splits me open in revelation and relief And I awake from the nightmare of separation. When I was a young, like most little girls I was often asked what I wanted to be when I grew up. Although I had myriad answers depending on the vogue at the time: ballerina, gymnast, photojournalist (yes, I actually said this in a paper I wrote once) the unequivocal primary answer was, “I just want to be a mother.” And I am.  It’s essential to my being. Like a lot of mothers who write, when stories […]